 | The Chronic Fatigue Syndrome Mystery Movie Why is there no massive epidemic of Chronic Fatigue Syndrome in the gay community? |
 | Funny You Don't Look Sick Trailer This intimate documentary self-portrait is told with humor and compassion. Susan Abod is a woman living with Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) and Multiple Chemical Sensitivities (MCS) or Environmental Illness. Filmed over a period of 18 months in 1994-95, Susan describes in detail the nature of her illness, illustrates her daily routine, and gives us a guided tour of her environmentally "safe" apartment. Comments from Susan's numerous doctors and a visit with her CFIDS support group offer further insights in this illuminating, firsthand report on a baffling, twenty-first century disease. |
 | ME/CFIDS/CFS - The Possible Consequences Of Medical Neglect Photo montage with music of how a severe ME CFIDS CFS patient may feel after years (or even decades) of psychiatric abuse, neglect and general medical incompetence. I hope, YouTubers, that you like the video and feel it represents some of your feelings such as the desperation you feel - when ignored and blamed for something not your fault. |
 | 'CFS' harms everyone, not just M.E. sufferers This video explains why it isn't just people with M.E. who are harmed by the creation of the bogus disease category of 'CFS' and why it harms everyone misdiagnosed with CFS. (Note that this is not about mere terminology, it is about the DEFINITIONS of 'CFS' not defining any distinct disease, including M.E., that is why every diagnosis of CFS is a MISdiagnosis.) Today patients with all sorts of different illnesses are commonly misdiagnosed as having 'CFS.' Under cover of the bogus disease category of CFS, this diverse mix of patients are treated as if they each suffered the exact same specific illness. This is clearly unscientific, and unethical. These patients must be given the opportunity to be diagnosed correctly if they are to have any chance of appropriate treatment or recovery, not given a meaningless 'CFS' misdiagnosis. Patients with M.E. need this same opportunity. Treating this diverse and heterogenous patient group as if their illnesses each shared the same symptoms, aetiology, pathology and response to treatment is inappropriate and highly unlikely to benefit the health and wellbeing of any of the patient groups involved. Treating this 'CFS' group as if they each shared a specific psychological or behavioural illness is also clearly inappropriate. Aside from representing a heterogenous patient group, many (likely the vast majority) of those with the diagnosis are not mentally ill, and do not suffer from behavioural problems. (This includes of course, those patients with authentic M.E.) Physicians who diagnose 'CFS' in any patient experiencing new onset fatigue without looking and testing for the true cause of the symptoms do their patients -- and themselves -- a great disservice. As Dr Elizabeth Dowsett explains, 'There is no such disease(s) as CFS' (b. [Online]) Some of the conditions commonly misdiagnosed as CFS are very well defined and well-known illnesses and very treatable -- but only once they have been correctly diagnosed. Some conditions are also very serious or can even be fatal if not correctly diagnosed and managed, including Myalgic Encephalomyelitis. Every patient deserves the best possible opportunity for appropriate treatment for their illness, and for recovery. This process must begin with a correct diagnosis if at all possible. A correct diagnosis is half the battle won. For more information on all aspects of M.E. see: http://www.ahummingbirdsguide.com/whatisme.htm |
 | Why everyone with Myalgic Encephalomyelitis needs a computer This video explains some of the reasons why everyone with Myalgic Encephalomyelitis needs a computer (with access to the internet). These comments would all no doubt apply equally to people with comparable illnesses to M.E., both politically and medically. a. Medically: Where a large percentage of patients are completely (or for significant periods of time) housebound and/or bedbound or otherwise limited with communication. (For example; if they are unable to have visitors, use the phone or speak: often/for very long at a time/without significant relapse afterward/without great difficulty or at all; as are many people with M.E.) b. Politically: Where the vast majority of information produced about the illness is so inaccurate and misleading as to amount to nothing less than propaganda; thanks to the involvement of vested interest groups, including the government (and with full support from government and the media -- with some notable exceptions in the case of the media). Myalgic Encephalomyelitis is not the same thing as 'CFS' (or ME/CFS, CFS/ME, ME-CFS, CFIDS or Myalgic 'Encephalopathy'). The bogus disease category of 'CFS' has undoubtedly been used to impose a false psychiatric paradigm of M.E. by allying it with various psychiatric fatigue states and various unrelated fatigue syndromes for the benefit of insurance companies and various other organisations and corporations which have a vested financial interest in how these patients are treated, including the government. This pretence of ignorance about M.E. -- and that M.E. and CFS are the same -- (particularly by government) has had devastating consequences for people with M.E. Many people with M.E. are subjected to medical abuse (and abuse by misinformed family members), denied even basic medical care and may also be subjected to inappropriate 'treatments' which are at best useless and at worst extremely harmful (people have been left wheelchair or bedbound afterward for years or DECADES, or in cardiac care units) or even fatal for people with M.E. These inappropriate interventions are the actual reason that so many people with M.E. are so severely affected in the first place. The decades of systemic abuse and neglect of the million or more children and adults with M.E. worldwide has to stop. It is grossly unscientific, unethical and inhuman. While there IS a lot of good information available about M.E. offline, it is very often only online that people with M.E. (and the parents of children with M.E.) learn of its existence. For so many people with M.E., the internet is not just a vital source of legitimate political and medical information about their illness; but it often provides their only source of support as well, and/or even their primary (or virtually only) method of communication. (If I were well enough, I would start a charity aimed at getting second-hand computers to M.E. sufferers who cannot afford them; particularly the housebound and those who cannot communicate for very long any other way.) For more information on all aspects of M.E. see: http://www.ahummingbirdsguide.com/whatisme.htm |
 | Bad beyond Belief A video response to the newly published NICE guidelines. |
 | M.E. / Chronic Fatigue Syndrome - Sleepydust Video The video aims to help the friends and family of ME/CFS (including Myalgic Encephalomyelitis (M.E.), Chronic Fatigue Syndrome (CFS), and Post Viral Fatigue Syndrome) sufferers understand the illness and what their loved ones are going through. To view a clearer, larger version of the video, visit: http://www.sleepydust.net/me-cfs-chronic-fatigue-syndrome-video.html |
 | Healthbeat Chronic Fatigue Syndrome Dr. Ramo describes the symptoms of chronic fatigue syndrome and what it can disguise itself as. |
 | ME/CFS - A Hidden National Scandal Exposed Dr Kerr & the 'cure' that never was. No cure had been made available. Not due to Dr Kerr - but due to the blocking of funds to continue his work. (As has happened to Dr Gow) - another genetic expert from Scotland who is also finding things in this illness that people don't want to hear. I wonder why? Not that they have anything to hide or anything, no...... This is an edited (for time) clip of a Meridian TV news item that appeared on our screens over here in England,UK in 2005. Meridian TV should be applauded for having the bravery to broadcast this - it was NOT broadcasted nationally to protect the Government from shame and being asked questions - obviously. Consequently, only a few people saw it. Even after this ground breaking genetic discovery was broadcast the UK Government stil continue to block funding for research and a diagnostic test for ME/CFS. In 2008, not one ME/CFS clinic exists in the UK. All money is still going to psychiatry and the 'Wessely School' - despite M.E being recognised as a neurological illness by the World Health Organisation (W.H.O) since 1969. This flow of money is blocked by the MRC (Medical Reseach Council) who are influenced by the insurance industry - who have too much to loose to open the flood gates with 100,000's of thousands of patients making disability claims. The truth on ME/CFS is thus kept tightly shut. Doctors, civil servants and the general public -still have no idea that ME can be fatal. All we hear about is 'recovered' CFS patients in the newspaper - who 'recover' by taking anti-depressants and deciding they weren't actually ill after all. As you may know, the 'recovery' rate for ME is around 2%. Meaning 98% of people do not recover. Despite this, the british media rarely print articles on the severely chronically sick and instead focus on the mentally ill. These mentally ill people are 'volunteered' towards the media by bogus CFS charities. These charities are funded by the national lottery (Lotto) and extra government funding - to push a psychiatric agenda. The UK Government, and the BMA (British Medical Association) are thus a disgrace - as are bogus CFS patients, bogus CFS charities and the corrupt and evil Psychiatrits who prey on desperately ill patients. The NHS website in the UK claims 'most' people get better, and that this illness may 'last for months'. This is surely immoral? Promising people with viraly induced brain stem/ cardiac damage/DNA damage a cure with CBT/GE - graded exercise and behavioural therapy! For the TRUTH on what ME does to people, go to: http://www.meresearch.org.uk/ http://www.investinme.org http://www.cfsrf.com/ http://www.investinme.org http://www.ahummingbirdsguide.com http://phoenix-cfs.org http://www.ahmf.org |
 | CFS/ME CDC "Missing My Life" Video by the American Centre for Disease Control and Prevention about the condition Chronic Fatigue Syndrome/Myalgic Encephalopathy, titled "Missing My Life". |
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